'My girl can't walk or talk': Searching for answers in Wales' rare disease cluster
NegativeHealth

In Wales, families grappling with a rare inherited disease are expressing their frustration over the lack of information and support. Many have described their struggle as a desperate search for answers, highlighting the emotional toll this situation has taken on their lives. This issue matters because it sheds light on the challenges faced by those affected by rare diseases and the urgent need for better communication and resources from health authorities.
— Curated by the World Pulse Now AI Editorial System