'My girl can't walk or talk': Searching for answers in Wales' rare disease cluster
NegativeWorld Affairs

In Wales, families grappling with a rare inherited disease are expressing their frustration over the lack of information and support. They describe a desperate search for answers as their loved ones face severe challenges, including the inability to walk or talk. This situation highlights the urgent need for better resources and communication regarding rare diseases, which can significantly impact the lives of those affected and their families.
— Curated by the World Pulse Now AI Editorial System